It’s been a little nuts around our home lately. After our last update, we have spent much time on the phone with Easton’s surgical team trying to figure out a surgery date, as well as try to secure lodging for our time in Houston, and try to get our house in order.
As of now, what we do know is that Easton’s surgeon does not want to wait a long time before preforming his next operation. We were hoping to find out his surgery date last week, but due to scheduling woes, we will more than likely find out tomorrow. We’ve been told to expect as early as the end of next week to maybe two weeks out, just depending on what they can do on their end. It’s all very overwhelming to think about, on top of being 35 weeks pregnant with baby brother.
With Easton’s heart anatomy being so unique, there is a tentative game plan for surgery, but unfortunately, we won’t know for sure until the operation has started. The surgeon will replace/resize the BT shunt that helps create blood flow and growth to Easton’s pulmonary arteries and it might finally be time to address some of the MAPCAS (collateral arteries that shouldn’t be there but are supplying about 50% of his blood flow to his lungs). Essentially, the collaterals are helping right now but they are not stable; with them supplying so much blood flow to his lungs, the cardiologist and surgeon want to make sure that they can salvage them but won’t know until the operation if now is the right time. Depending on what exactly is done, we’ve been told to expect a few weeks to a few months of recovery.
Obviously, as you all can imagine, there is a heavy burden that Stephen and I both carry knowing that our sweet little man needs these necessary operations but it is scary to walk this path. We are constantly asked how can those around us help or to let those around know when we need help, so we are going to be connecting the link to Easton’s GoFundMePage to this post. Life in the hospital is not only physically and emotionally draining, it is financially draining as well. While God has blessed us immensely with great insurance, there is only so much insurance will cover. It is about $3000 a month for lodging (close to the med center), $350 a month for parking, and then whatever is spent on eating and food while we are there. All of the money that was previously given in the fund has all gone towards our medical expenses over the past 15 months that we have traveled back and forth to Houston.
To those of you who are our diligent prayer warriors, not a day goes by that we don’t feel covered in prayer. To those of who have witnessed and experienced life with us and Easton, in both Fort Worth and Houston, thank you for the love and hospitality that you have shown our family. To those of you who feel compelled to give financially we couldn’t be more thankful for your contribution to help our growing family in a very hectic, daunting yet exciting season of life.
We are utterly thankful and grateful for all of the prayers, support, and encouragement that have been bestowed upon our family. Thank you.
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